Okay lets see, went home on Weds. finally. I just told them I felt better because I wanted to leave so badly. Lord I couldn't sleep there. Between them waking me up to check blood pressure and taking blood and then the noise from the break room right beside mine, I just wanted a night in my own bed.
So all is going well at home...Thurs, Friday...spent the day with Clay and Livi. Grocery shopping, running around getting kids. I did have to take a nap..still taking the naps. but other then that everything was going great. Then Saturday morning.. BAM...my stomach again is just blah. Nausea like you wouldn't believe..the worst stink burps, they were so bad I was making myself sick. Clay called the Dr. and they told him to keep an eye on me and if I started to run a fever take me to the emergency room. They were worried about blocked bowels, infection that sort of thing. So around 6 pm I start to run a fever. Long story short, go to the ER, x-rays and CT of belly show I have a kidney stone. A big one, that is completely blocking my left kidney. I'm one of the lucky few who do not have any pain, just the nausea. It did cause an infection in my kidney, so I got to spend the night in the hospital again while getting IV antibiotics.
Crazy crazy two weeks. Healing great from the hysterectomy. Had my 2 week check up, and I'm doing great. So far none of the nasty side effects. Other then being tired I'm fine. I do have some groin pain, which Dr Hines says should go away. Now it is unpleasant. Burns like a mofo! Seems my nerves and muscles have been cut one to many times, so there is some scar tissue..yadda yadda. It comes out of no where and just about drops me to my knees. Hopefully it will resolve itself soon! Great news, pathology report came back all clear. No cancer at all in the uterus, tubes, ovaries or the lovely mole he removed.
Had a stent put on this past Monday..another surgery. This coming Friday I get to have the kidney stone blasted..another out patient surgery. Then hopefully the stone will pass and the stent will be taken out, my pain will resolve itself and I will get to go back to normal. Well as normal as you can be with out hormones..lol
Its done, I'm glad its done. I have lowered my chances of breast cancer by 50 percent, and have pretty much put myself in the clear for Ovarian cancer. I have another breast biopsy on Tuesday. Of course this is now part of my life..watching and waiting...I'm good. I'm healthy...I'm alive and cancer free.
Friday, March 18, 2011
Monday, March 7, 2011
I want to go home!
Well I have had the hysterectomy. Nothing to hard in that. Once I found out that I was carrying the mutation the decision was pretty much made. I just need the details for after. What to expect.
We can start with what happens before. The day before surgery, you have to do a bowel prep. Now this isn't that bad until the meds actually kick in and then your pissing out your arse. And I mean literally pissing out your arse. Start at 12 with 2 duclolax then at 3pm you add 32 oz of miralax to a 64 oz container of Gatorade..any flavor you like..as if that will help. :) Drink 8oz glasses of this mix every 15 Min's until its gone. Bet you can't guess what happens next? Let me tell you. As soon as you finish that last glass, and your stomach is blown up to look like your 6 moths pregnant, you run as fast as you can, and do not stop until you are sitting on your new best friend. Nothing to eat or drink after 12am that night...or the next morning before surgery. Sucks :)
I went in under general anesthesia. A few hours later I was waking up in the post op room. The twilight martini they give you before hand knocks me right out.
Leads to now.
Its Monday. I want to go home. The surgery went well. No complications. I have been having issues with a low grade fever and my blood pressure being to low. Was having horrible dizzy/nausea spells. Thought it was the morphine drip. Well no more morphine and its still here. I wish it would go away, I really am so ready to go home. The pain is bearable, the percocete gets me through for about 6 hrs. But this feeling, the light headed, pukey feeling..its got to go. Blood pressure is back to normal, fever is gone and the yuck still stays with me. If any of you have suffered a migraine..you know the way your stomach gets when you are in the light..that is where I am now, just want to keep a pillow over my head.
Oh and not sleeping. I'm hoping that it is just because I'm here in the hospital. But I haven't had a full night sleep since the Thursday night before surgery. By 2am I'm wide awake :(
So there is my update for now. I'll post again after I get home. Surely the doctors can figure out what is going on.
We can start with what happens before. The day before surgery, you have to do a bowel prep. Now this isn't that bad until the meds actually kick in and then your pissing out your arse. And I mean literally pissing out your arse. Start at 12 with 2 duclolax then at 3pm you add 32 oz of miralax to a 64 oz container of Gatorade..any flavor you like..as if that will help. :) Drink 8oz glasses of this mix every 15 Min's until its gone. Bet you can't guess what happens next? Let me tell you. As soon as you finish that last glass, and your stomach is blown up to look like your 6 moths pregnant, you run as fast as you can, and do not stop until you are sitting on your new best friend. Nothing to eat or drink after 12am that night...or the next morning before surgery. Sucks :)
I went in under general anesthesia. A few hours later I was waking up in the post op room. The twilight martini they give you before hand knocks me right out.
Leads to now.
Its Monday. I want to go home. The surgery went well. No complications. I have been having issues with a low grade fever and my blood pressure being to low. Was having horrible dizzy/nausea spells. Thought it was the morphine drip. Well no more morphine and its still here. I wish it would go away, I really am so ready to go home. The pain is bearable, the percocete gets me through for about 6 hrs. But this feeling, the light headed, pukey feeling..its got to go. Blood pressure is back to normal, fever is gone and the yuck still stays with me. If any of you have suffered a migraine..you know the way your stomach gets when you are in the light..that is where I am now, just want to keep a pillow over my head.
Oh and not sleeping. I'm hoping that it is just because I'm here in the hospital. But I haven't had a full night sleep since the Thursday night before surgery. By 2am I'm wide awake :(
So there is my update for now. I'll post again after I get home. Surely the doctors can figure out what is going on.
Tuesday, February 8, 2011
Ugh..I hate this feeling.
So I had my first preventative MRI 2 weeks ago.. 3 days later got the call that they found something suspicious. Yesterday I had my first MRI guided biopsy. Not something I really look forward to doing again.
During the MRI, I remember thinking that I could do this, I can keep my breast and do the mammograms and MRI's. That it wasn't such a big deal. Its not the most comfortable position, lying on your belly, arms over your head and breast swinging in the lovely cups. My God the noise that machine makes. But I got through my IV, contrast and 25 minutes. For some reason yesterday it was harder. I am not a big fan of needles- actually I hate them, over the years I've learned to deal with them. As I was laying there, it just hit me. With me keeping my breast this would now be my life. How many more times would I be lying there having a biopsy done. The wonderful thing about MRI's, they find everything. The awful thing, they find everything..and then you have a biopsy. I may just be over reacting, since this is the baseline MRI, and maybe the next time around they won't find anything. I just wonder if this is what I want to go through.
So now I have to wait until next Monday for the results. I'm not really concerned, the doctor did tell me the majority of what is found is not cancerous. But I can see that it is bothering my husband. He is worried and that bothers me more then going through the test.
So Friday I get to visit with the plastic surgeon to go over reconstruction alternatives. If I ever decided to have the mastectomy. Then on Monday I get the results of the biopsy. Also have two other doctors appointments for the up and coming hysterectomy. Seems that right now that is all my life is full of...doctor appointments, my life is now ruled by a nasty mutation..
During the MRI, I remember thinking that I could do this, I can keep my breast and do the mammograms and MRI's. That it wasn't such a big deal. Its not the most comfortable position, lying on your belly, arms over your head and breast swinging in the lovely cups. My God the noise that machine makes. But I got through my IV, contrast and 25 minutes. For some reason yesterday it was harder. I am not a big fan of needles- actually I hate them, over the years I've learned to deal with them. As I was laying there, it just hit me. With me keeping my breast this would now be my life. How many more times would I be lying there having a biopsy done. The wonderful thing about MRI's, they find everything. The awful thing, they find everything..and then you have a biopsy. I may just be over reacting, since this is the baseline MRI, and maybe the next time around they won't find anything. I just wonder if this is what I want to go through.
So now I have to wait until next Monday for the results. I'm not really concerned, the doctor did tell me the majority of what is found is not cancerous. But I can see that it is bothering my husband. He is worried and that bothers me more then going through the test.
So Friday I get to visit with the plastic surgeon to go over reconstruction alternatives. If I ever decided to have the mastectomy. Then on Monday I get the results of the biopsy. Also have two other doctors appointments for the up and coming hysterectomy. Seems that right now that is all my life is full of...doctor appointments, my life is now ruled by a nasty mutation..
Monday, January 24, 2011
Friday, January 7, 2011
I am my genes
I'm tall for a woman. Blue eyes. Auburn hair. These attributes are all genetic. BRCA2+ , something else I inherited. I was always told I looked like my father..tall and thin. The strong jaw. It seems that BRCA mutation is strong, because that I got that from mom, along with her nose..thank God. (Sorry Dad) Since I have had the test I think about it a lot. I'm sure those of us that have found out do. I suppose I think about it most because of my kids. My husband and I always notice who got what from whom..lol. My son is me, he looks the most like my side of the family. My girls have alot from their father. I pray that my husbands genes were the stronger and that none of our kids got the BRCA2 from me. Its all in the genes, and this is the one gene I don't want to pass on. If it ends with me I'll be happy.
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